Home PublicationsCommentary Americans Want to Share Their Medical Data. So Why Can’t They?

Americans Want to Share Their Medical Data. So Why Can’t They?

by Eleni Manis
by
Health records

Americans are willing to share personal data — even sensitive medical data — to advance the common good. A recent Stanford University study found that 93 percent of medical trial participants in the United States are willing to share their medical data with university scientists and 82 percent are willing to share with scientists at for-profit companies. In contrast, less than a third are concerned that their data might be stolen or used for marketing purposes. However, the majority of regulations surrounding medical data focus on individuals’ ability to restrict the use of their medical data, with scant attention paid to supporting the ability to share personal data for the common good.

Read the full article in RealClear Health.

Image: Medill DC

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